4BL4TMpGYs8 china.huanqiu.comarticle又见“灵魂谈判”！罕见病药品价格是如何从63800砍到3780的/e3pmh1nnq/e7tl4e309<article><section data-type="rtext"><p><i class="pic-con"><img data-alt="" src="//img.huanqiucdn.cn/dp/api/files/imageDir/402c2346fe0992a24cc345d515147d0au5.jpg?imageView2/2/w/1260" /></i></p><p>罕见病用药一直是医保关注的重点，脊髓性肌萎缩症（SMA）是一种高致死率和高致残率的罕见病。去年，SMA治疗用药诺西那生钠就是通过谈判降价进入医保目录，让SMA患者从目录内无药可用变成有药可用。今年，一款SMA口服药同样通过谈判纳入目录，这让罕见病患者从有药可用变成有药可选。</p><p><video controls src="http://v6.huanqiucdn.cn/4394989evodtranscq1500012236/a70a106c243791578599873664/v.f100830.mp4" data-alt="" poster="https://v6.huanqiucdn.cn/4394989evodtranscq1500012236/a70a106c243791578599873664/sampleSnapshot/sampleSnapshot_10_0.jpg?imageView2/2/w/1260"></video></p></section></article>1674035221767责编：王丹<a href="https://weibo.com/1977460817/MoT4SvMp1?pagetype=groupfeed" >央视网快看</a>167403522176711[]{"email":"wangdan@huanqiu.com","name":"王丹"}